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Sociodemographic Factors and Criminal Behaviour Preceding Neurodegenerative Disease - Retrospective Register Study

Study acronym: DEGERWD
StatusActive, Not Recruiting
PhaseNot specified
Started
View on ClinicalTrials.gov ↗
Trial flagged as At Risk
Primary completion moved at least 2 years later Dec 31, 2027 → Dec 31, 2029
See other at-risk trials from Kuopio University Hospital

Record History

  1. Notable Primary and study completion pushed from Dec 31, 2027 to Dec 31, 2029v3
  2. Minor Re-verified, no change to tracked fieldsv2
  3. Minor Study First Submitted
  • Stopped: an ongoing trial was terminated, suspended or withdrawn.
  • Notable: the trial’s plan changed such as a big move in its timeline or size, a new primary endpoint, sponsor or phase, or recruiting opened or resumed.
  • Minor: routine progress and housekeeping, such as sites added or enrollment closed.
1,978 trials monitored
See 106 trials at risk
and 2 more diseases
In this retrospective register study, clinically classified individuals with neurodegenerative disease from the years 2010-2021 will be verified from the clinical records from KUH and Oulu University Hospital (OUH). Based on the Finnish social security number, these individuals will be linked to the the national registers of Statistics Finland and Finnish Social and Health Data Permit Authority Findata including incomes, sociodemographic factors, education, occupation, criminal records as well as to the national registers including the bought pharmaceuticals, comorbidities and causes of death. For each study case, 10 randomly selected control cases, matched with age, sex and geographical area, will be used. The aim of the study is to examine: * 1\) The prevalence of criminal and other disruptive behaviour in groups of different neurodegenerative diseases prior to and after the diagnosis * 2\) Changes in employment, residency,income, and marital status prior to and after the neurodegenerative disease diagnosis * 3\) Hospital diagnoses and reimbursable drugs prior to and after the diagnosis * 4\) Causes of death in patients with neurodegenerative disease to study excess mortality of the patients
Trial Details
NCT Number NCT06209515
Lead Sponsor Kuopio University Hospital
Conditions
(from sponsor)
Neurodegenerative Diseases, Alzheimer Disease, Frontotemporal Dementia, Lewy Body Disease, Vascular Dementia, Parkinson Disease, Progressive Supranuclear Palsy, Corticobasal Degeneration +3 more
Related terms Alzheimer Disease, Amyotrophic Lateral Sclerosis, Corticobasal Degeneration, Dementia, Vascular, Frontotemporal Dementia, Huntington Disease, Lewy Body Disease, Multiple System Atrophy, Neurodegenerative Diseases, Parkinson Disease, Supranuclear Palsy, Progressive
Enrollment 61,292 participants
Start Date
Primary Completion (estimated)
Study Completion (estimated)
Updated on ClinicalTrials.gov