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Prescreening Study to Identify Potential Wilson Disease Participants for Gene-Editing Clinical Trial

StatusActive, Not Recruiting
PhaseNot specified
Started
View on ClinicalTrials.gov ↗

Record History

  1. Trial status changed: Recruiting → Active, Not Recruiting
    • Site details revised at 7 of 7 sites
    v8
  2. Site details revised at 1 of 7 sitesv7
  3. Site details revised at 2 of 7 sitesv6
  4. Study sites: 6 to 7v5
  5. Site details revised at 1 of 6 sitesv4
Show 2 earlier versionsHide 2 earlier versions
  1. Start date changed from estimate of Dec 2025 to Dec 29, 2025
    • Site details revised at 1 of 6 sites
    v3
  2. Trial status: Not Yet Recruiting to Recruiting
    • Site details revised at 6 of 6 sites
    v2
  1. Study First Submitted
  • Stopped: an ongoing trial was terminated, suspended or withdrawn.
  • Notable: the trial’s plan changed such as a big move in its timeline or size, a new primary endpoint, sponsor or phase, or recruiting opened or resumed.
  • Minor: routine progress and housekeeping, such as sites added or enrollment closed.
The aim of this study is to inform and improve future clinical trials in Wilson Disease (WD) by better understanding how patients with WD are living with and managing the disease, and by identifying key factors that shape their decisions to participate in clinical research.
Trial Details
NCT Number NCT07226622
Lead Sponsor Prime Medicine, Inc.
Conditions
(from sponsor)		 Wilson Disease
Related terms Congenital, Hereditary, and Neonatal Diseases and Abnormalities, Genetic Diseases, Inborn, Hepatolenticular Degeneration, Liver Diseases, Metabolic Diseases, Metabolism, Inborn Errors, Metal Metabolism, Inborn Errors, Nutritional and Metabolic Diseases
Enrollment 30 participants
Start Date
Primary Completion (estimated)
Study Completion (estimated)
Updated on ClinicalTrials.gov