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NCT06820515 · ClinicalTrials.gov record · last posted 2026-04-21

ATHNdataset Registry

StatusRecruiting
PhaseNot specified
Started2024-10-25
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from the ClinicalTrials.gov record
The Hemophilia Treatment Center (HTC) where you receive care is working with The American Thrombosis and Hemostasis Network (ATHN) to look at the quality of life of people with blood disorders and problems. Doctors, scientists, policymakers, and other health care providers need a large amount of information from a lot of people to answer scientific, public health, and policy questions about better ways to treat blood disorders. They will use the information from the ATHNdataset to answer these questions.

Amendment record 3 amendments on the ClinicalTrials.gov record

This ClinicalTrials.gov record has been amended 3 times since 2025-02-06; most recent amendment 2026-04-16. DataLookout shows field-level changes from the day a trial enters its daily monitoring; earlier amendments are counted here from the ClinicalTrials.gov version history. See every version on ClinicalTrials.gov ↗

2026-04-16
Status change Enrolling by Invitation→Recruitingv3
Trial Details
NCT Number NCT06820515
Lead Sponsor American Thrombosis and Hemostasis Network
Conditions Hemophilia, Thrombosis, Hemophilia A, Hemophilia B, Sickle Cell Disease, Glanzmann Thrombasthenia, Bleeding Disorder, Blood Disorder +1 more
Enrollment 200,000 participants
Start Date 2024-10-25
Primary Completion 2054-10-25 (estimated)
Study Completion 2055-10-31 (estimated)
Updated on ClinicalTrials.gov 2026-04-21