Disease landscape

Angelman Syndrome clinical trials

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18 active trials 11 recruiting 5 Phase 3 13 sponsors 1 changes in 30 days

Data updated daily from ClinicalTrials.gov, last refresh 2026-08-28

What changed in the last 30 days

2026-08-21
notable
Enrollment closed, study ongoing
NCT05127226 HALOS: A Safety, Tolerability, Pharmacokinetics and Pharmacodynamics Study of Multiple… · Ionis Pharmaceuticals, Inc. · Phase 1/2

Active trials by phase

Phase 1/2
2
Phase 2
1
Phase 3
5
Not charted: 10 active trials with no phase listed on ClinicalTrials.gov (typically behavioural, device, procedure and observational studies).

Active trials

NCT IDTitleSponsorStatusUpdated
Phase 3
NCT06914609 REVEAL: A Phase 3 Study of Obudanersen (ION582) in Angelman Syndrome Ionis Pharmaceuticals, Inc. Recruiting 2026-08-12
NCT07605429 BEACON - Phase III Clinical Study of Rugonersen in Angelman Syndrome. OHB Pediatrics Ltd. Recruiting 2026-07-28
NCT07782827 CHAMPION: A Study to Evaluate the Efficacy and Safety of Obudanersen (ION582) in Children… Ionis Pharmaceuticals, Inc. Not Yet Recruiting 2026-08-24
NCT06617429 Phase 3 Efficacy and Safety Study of GTX-102 in Pediatric Subjects With Angelman Syndrome… Ultragenyx Pharmaceutical Inc Active, Not Recruiting 2026-08-06
NCT06415344 Long-term Extension of GTX-102 in Angelman Syndrome Ultragenyx Pharmaceutical Inc Enrolling by Invitation 2026-07-27
Phase 2
NCT07157254 A Safety and Efficacy Study of GTX-102 in Subjects With Deletion- or Nondeletion-type… Ultragenyx Pharmaceutical Inc Recruiting 2026-08-07
Phase 1/2
NCT07181837 A Phase 1/2 Study of the Safety and Efficacy of MVX-220 in Angelman Syndrome MavriX Bio, LLC Recruiting 2026-07-24
NCT05127226 HALOS: A Safety, Tolerability, Pharmacokinetics and Pharmacodynamics Study of Multiple… Ionis Pharmaceuticals, Inc. Active, Not Recruiting 2026-08-20
Not applicable
NCT06139172 Web Intervention for Parents of Youth With Genetic Syndromes (WINGS) Rush University Medical Center Active, Not Recruiting 2026-07-13
NCT03836300 Parent and Infant Inter(X)Action Intervention (PIXI) RTI International Enrolling by Invitation 2026-07-13
Not specified
NCT07417137 A Natural History Study of Angelman Syndrome Massachusetts General Hospital Recruiting 2026-08-21
NCT06737718 Use of Eye Tracking to Study Social Perception Abnormalities in Children With Angelman… Assistance Publique - Hôpitaux de Paris Recruiting 2026-03-16
NCT05945576 IDMet (RaDiCo Cohort) (RaDiCo-IDMet) Institut National de la Santé Et de la Recherche Médicale, France Recruiting 2026-02-12
NCT06229769 Natural History Study for Patients With Angelman Syndrome Centre Hospitalier Universitaire de Liege Recruiting 2025-05-20
NCT04507997 Angelman Syndrome Natural History Study Boston Children's Hospital Recruiting 2025-04-03
NCT06353620 Structural-functional Connectome in Drug-resistant Epilepsies and Neurodevelopmental… IRCCS Eugenio Medea Recruiting 2024-04-09
NCT05293184 The Global Angelman Syndrome Registry Foundation for Angelman Syndrome Therapeutics, Australia Recruiting 2024-02-23
NCT03655223 Early Check: Expanded Screening in Newborns RTI International Active, Not Recruiting 2026-07-01

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