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Teleneurology Assessment Program for Creutzfeldt-Jakob Disease

Study acronym: TAPCJD
StatusRecruiting
PhaseNot specified
Started
View on ClinicalTrials.gov ↗

Record History

  1. Study First Submitted
This observational study uses secure videoconference visits to follow people with Creuztzfeldt-Jakob disease (CJD) over time. The study collects information about participants' symptoms, neurological function, thinking and memory, and ability to perform daily activities. It also collects information from study partners about the participant and about their own well-being and experiences as caregivers. The goal of the study is to better understand how CJD changes over time and to evaluate the use of remote assessments for CJD research and surveillance.
Trial Details
NCT Number NCT07840547
Lead Sponsor University Hospitals Cleveland Medical Center
Collaborators: Case Western Reserve University, CJD Foundation
Conditions
(from sponsor)		 Creutzfeldt-Jakob Disease (CJD) | Prion Disease
Related terms Caregiver Burden, Creutzfeldt-Jakob Syndrome, Prion Diseases
Enrollment 200 participants
Start Date
Primary Completion (estimated)
Study Completion (estimated)
Updated on ClinicalTrials.gov