Track this trial free. DataLookout checks ClinicalTrials.gov daily and emails you which fields changed on NCT07805278 (status, enrollment, completion dates, endpoints, sites) when this record is updated. Free accounts track up to 5 trials.

Track this trial

A Registry of Cases of Spinal Muscular Atrophy

Name: A Registry of Cases of Spinal Muscular Atrophy — clinical trial record (NCT07805278)
Creator: DataLookout
License: https://creativecommons.org/licenses/by/4.0/

StatusRecruiting

PhaseNot specified

SponsorSt. Jude Children's Research Hospital

Started2026-09

View on ClinicalTrials.gov ↗

Because no long-term record of prenatal Spinal Muscular Atrophy (SMA) treatment exists, this study will address an important gap in the understanding of the safety and benefit of treatment while in the womb. The registry will help guide best practices for monitoring pregnant women and their fetus with SMA, if treated with a medication while in the womb, and to follow the baby after birth for signs of safety and added benefit birth and support future research and study development.

Amendment history 1 change detected by DataLookout

2026-09-09

Recruitment opened

Trial Details

NCT Number	NCT07805278
Lead Sponsor	St. Jude Children's Research Hospital
Conditions	Spinal Muscular Atrophy
Enrollment	30 participants
Start Date	2026-09
Primary Completion	2029-08 (estimated)
Study Completion	2033-08 (estimated)
Updated on ClinicalTrials.gov	2026-09-08