Heart Institute Biobank & Registry for Adult Congenital Heart Disease and Related Disorders

A repository of biospecimens and detailed phenotypic information collected longitudinally from adults with congenital heart disease and related conditions, with an aim to facilitate future research on biologic mechanisms of underlying disease, compensation and deterioration; biologic correlates of patient experience and functional status; associations between clinical characteristics and various biomarkers; and predictors of clinical outcomes.

NCT Number	NCT07477197
Lead Sponsor	Children's Hospital Medical Center, Cincinnati
Conditions	Adult Congenital Heart Disease, Pulmonary Hypertension, Connective Tissue Disease, Other Cardiovascular Conditions
Enrollment	5,000 participants
Start Date	2021-07-01
Primary Completion	2050-01-01 (estimated)
Study Completion	2050-01-01 (estimated)
Updated on ClinicalTrials.gov	2026-03-17