MND Together: Phase 1

This project consists of two workstreams, both of which will be mixed-methods and aim to develop a national UK picture of current care coordination for people with MND, including observations of barriers and facilitators. The studies will explore how care is transferred and communicated across MND specialist services to non-specialist community health settings. In workstream 1, the researchers will conduct focus groups with people with MND, Carers, former Carers, Health and Social Care Professionals and managers and commissioners. These focus groups, alongside the analysis of routine data, will create a national picture of MND care and begin a behavioural diagnosis of the barriers and facilitators. In workstream 2, a multi-site ethnography study will be conducted, including observations, interviews, routine data, care plan and document review. This Workstream will observe how care is coordinated between specialist and non-specialist services and continue to explore barriers and facilitators that can not be identified through interviews.

NCT Number	NCT07393932
Lead Sponsor	University of Sheffield Collaborators: National Institute for Health Research, United Kingdom, Liverpool John Moores University, Sheffield Teaching Hospitals NHS Foundation Trust, Cornwall Partnership NHS Foundation Trust, Northern Lincolnshire and Goole Hospitals NHS Foundation Trust, Dementias Platform UK, NIHR HealthTech Research Centre, Swansea Bay University Health Board
Conditions	MND (Motor Neurone DIsease)
Enrollment	287 participants
Start Date	2026-02
Primary Completion	2026-12 (estimated)
Study Completion	2027-02 (estimated)
Updated on ClinicalTrials.gov	2026-02-06