Clinical Trial

Stakeholders of Rare Diseases Informing Values In Neuroethics

Recruiting
View on ClinicalTrials.gov →
Summary
The purpose of this research study is to learn more about the perspectives of key stakeholders-patients, families, healthcare providers, and researchers-on the ethical challenges of small-scale, personalized treatment trials for rare neurological diseases (RND).
Protocol Amendment History 7 amendments
This ClinicalTrials.gov record has been amended 7 times since 2025-12-30; most recent amendment 2026-07-10.
Status change: Not Yet Recruiting → Recruiting 2026-02-27
Trial Details
NCT Number NCT07314736
Lead Sponsor St. Jude Children's Research Hospital
Conditions Rare Disorder, Disorder, Neurologic
Enrollment 385 participants
Start Date 2026-07-08
Primary Completion 2031-01 (estimated)
Study Completion 2031-01 (estimated)
Updated on ClinicalTrials.gov 2026-07-13