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Experience and Management of Cancer Screening-Related Anxiety in Fanconi Anemia

StatusActive, Not Recruiting
PhaseNot specified
Started
View on ClinicalTrials.gov ↗
Trial flagged as At Risk
Primary completion moved at least 3 years 4 months later Sep 1, 2026 → Jan 1, 2030
See other at-risk trials from National Cancer Institute (NCI)

Record History

The 50 most recent of 357 record versions are listed below. See every version on ClinicalTrials.gov ↗

  1. Primary completion pushed from Sep 1, 2026 to Jan 1, 2030 Enrollment closed, study ongoing · Completion pushed from Jan 30, 2027 to Feb 1, 2030 · Start date changed from estimate of Sep 1, 2026 to Dec 5, 2024 Show 3 more changesShow less
    • Enrollment closed, study ongoing
    • Completion pushed from Jan 30, 2027 to Feb 1, 2030
    • Start date changed from estimate of Sep 1, 2026 to Dec 5, 2024
  2. Start date: Aug 31, 2026 to Sep 1, 2026v356
  3. Start date: Aug 30, 2026 to Aug 31, 2026v355
  4. Start date: Aug 27, 2026 to Aug 30, 2026v354
  5. Start date: Aug 26, 2026 to Aug 27, 2026v353
Show 29 earlier versionsHide 29 earlier versions
  1. Start date: Aug 25, 2026 to Aug 26, 2026v352
  2. Start date: Aug 24, 2026 to Aug 25, 2026v351
  3. Start date: Aug 23, 2026 to Aug 24, 2026v350
  4. Start date: Aug 20, 2026 to Aug 23, 2026v349
  5. Start date: Aug 19, 2026 to Aug 20, 2026v348
  6. Start date: Aug 18, 2026 to Aug 19, 2026v347
  7. Start date: Aug 17, 2026 to Aug 18, 2026v346
  8. Start date: Aug 16, 2026 to Aug 17, 2026v345
  9. Start date: Aug 13, 2026 to Aug 16, 2026v344
  10. Start date: Aug 12, 2026 to Aug 13, 2026v343
  11. Start date: Aug 11, 2026 to Aug 12, 2026v342
  12. Start date: Aug 10, 2026 to Aug 11, 2026v341
  13. Start date: Aug 7, 2026 to Aug 10, 2026v340
  14. Start date: Aug 6, 2026 to Aug 7, 2026v339
  15. Start date: Aug 5, 2026 to Aug 6, 2026v338
  16. Start date: Aug 4, 2026 to Aug 5, 2026v337
  17. Start date: Aug 3, 2026 to Aug 4, 2026v336
  18. Start date: Aug 2, 2026 to Aug 3, 2026v335
  19. Start date: Jul 30, 2026 to Aug 2, 2026v334
  20. Start date: Jul 29, 2026 to Jul 30, 2026v333
  21. Start date: Jul 28, 2026 to Jul 29, 2026v332
  22. Start date: Jul 27, 2026 to Jul 28, 2026v331
  23. Start date: Jul 26, 2026 to Jul 27, 2026v330
  24. Start date: Jul 23, 2026 to Jul 26, 2026v329
  25. Start date: Jul 22, 2026 to Jul 23, 2026v328
  26. Start date: Jul 21, 2026 to Jul 22, 2026v327
  27. Start date: Jul 20, 2026 to Jul 21, 2026v326
  28. Start date: Jul 19, 2026 to Jul 20, 2026v325
  29. Start date: Jul 16, 2026 to Jul 19, 2026v324
  1. Primary completion pushed from Jul 1, 2026 to Sep 1, 2026 Start date: Jul 15, 2026 to Jul 16, 2026v323 Show 1 more changeShow less
    • Start date: Jul 15, 2026 to Jul 16, 2026
  2. Start date: Jul 14, 2026 to Jul 15, 2026v322
  3. Primary completion date: Jul 1, 2026 to Sep 1, 2026 Start date: Jul 1, 2026 to Jul 14, 2026v321 Show 1 more changeShow less
    • Start date: Jul 1, 2026 to Jul 14, 2026
  4. Start date: Jun 30, 2026 to Jul 1, 2026v320
  5. Start date: Jun 29, 2026 to Jun 30, 2026v319
  6. Start date: Jun 28, 2026 to Jun 29, 2026v318
  7. Start date: Jun 24, 2026 to Jun 28, 2026v317
  8. Start date: Jun 23, 2026 to Jun 24, 2026v316
  9. Start date: Jun 22, 2026 to Jun 23, 2026v315
  10. Start date: Jun 21, 2026 to Jun 22, 2026v314
  11. Start date: Jun 18, 2026 to Jun 21, 2026v313
  12. Start date: Jun 17, 2026 to Jun 18, 2026v312
  13. Start date: Jun 16, 2026 to Jun 17, 2026v311
  14. Start date: Jun 15, 2026 to Jun 16, 2026v310
  15. Start date: Jun 14, 2026 to Jun 15, 2026v309
  16. Start date: Jun 11, 2026 to Jun 14, 2026v308
  • Stopped: an ongoing trial was terminated, suspended or withdrawn.
  • Notable: the trial’s plan changed such as a big move in its timeline or size, a new primary endpoint, sponsor or phase, or recruiting opened or resumed.
  • Minor: routine progress and housekeeping, such as sites added or enrollment closed.
Background: Fanconi anemia (FA) is a rare, inherited cancer syndrome. FA causes a range of physical issues. Children with FA may have abnormal features; these may include a small head and eyes and issues with their internal organs. Young adults have a much higher risk of cancer. To screen for these cancers, people with FA may need to pursue many visits with different doctors. This constant need for cancer screening may cause anxiety for people with FA. Objective: To learn more about anxiety related to cancer screenings in people with FA. Eligibility: Adults aged 18 years and older with FA. They must also be enrolled in FACSS. FACSS is a study that screens people with FA for cancer every year. Design: All data gathered for this study will occur during routine FACSS visits. No other visits are needed. An observer will be in the room during participants FACSS visits. The observer and participant will have a polite introduction. After that, the observer will not interact with participants in any way. The observer will note details about the participants, such as: * Body language. * Worries about screening. * Comments that suggest anxiety or depression. * Clinical environment, such as d(SqrRoot)(Copyright)cor and temperature. * Accessibility issues. These can include lights and noises as well as ease of traveling around the clinic center. * Evidence of social support, such as engaging in the FA community. * Challenges they ve had in FACSS. * Their motivation to participate in FACSS. * Relationship dynamics among clinic staff, participants, and their care partners. Data will also be collected from FACSS visit notes dating back to December 2024 and from participants medical records.
Trial Details
NCT Number NCT06744283
Lead Sponsor National Cancer Institute (NCI)
Conditions Fanconi Anemia
Enrollment 20 participants
Start Date
Primary Completion (estimated)
Study Completion (estimated)
Updated on ClinicalTrials.gov