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Epilepsy Learning Healthcare System (ELHS)

Study acronym: ELHS
StatusRecruiting
PhaseNot specified
Started
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Record History

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  1. Enrollment target: 1000 to 100000v2 Show 5 more changesShow less
    • Primary endpoints: 3 to 4
    • Study sites: 10 to 13
    • Study description expanded, about 64 words
    • Study arms: 9 to 12
    • Eligibility criteria shortened, about 1 word
  2. Study First Submitted
  • Stopped: an ongoing trial was terminated, suspended or withdrawn.
  • Notable: the trial’s plan changed such as a big move in its timeline or size, a new primary endpoint, sponsor or phase, or recruiting opened or resumed.
  • Minor: routine progress and housekeeping, such as sites added or enrollment closed.
The Epilepsy Learning Health System (ELHS) is a quality improvement and research network to improve outcomes for people with epilepsy. The ELHS is designed as a model of value-based chronic care for epilepsy as envisioned by the National Academies of Medicine Committee in their landmark reports "The Learning Health System" and "Epilepsy Across the Spectrum: Promoting Health and Understanding". The ELHS network is a collaboration among clinicians, patients and researchers that promotes the use of data for multiple purposes including one-on-one clinical care, population management, quality improvement and research. The ELHS Registry includes data on children and adults with epilepsy collected during the process of standard epilepsy care. These data are used to create population health reports and to track changes in outcomes over time. ELHS teams use quality improvement methods, such as Plan-Do-Study-Act (PDSA) cycles, to continuously learn how to improve care.
Trial Details
NCT Number NCT06265103
Lead Sponsor Epilepsy Foundation of America
Conditions
(from sponsor)		 Epilepsy, Seizure Disorder, Neurologic Disorder, Rare Diseases
Related terms Brain Diseases, Chronic Disease, Developmental Disabilities, Epilepsy, Epilepsy, Post-Traumatic, Nervous System Diseases, Rare Diseases, Seizures
Enrollment 100,000 participants
Start Date
Primary Completion (estimated)
Study Completion (estimated)
Updated on ClinicalTrials.gov