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NCT06139172 · ClinicalTrials.gov record · last posted 2026-07-13

Web Intervention for Parents of Youth With Genetic Syndromes (WINGS)

StatusActive, Not Recruiting
PhaseNot applicable
Started2023-09-15
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from the ClinicalTrials.gov record
The purpose of this study is to evaluate the effectiveness of an adapted, telehealth functional behavioral therapy (FBTsIDD) specifically focused on promoting appropriate communication and behavioral strategies in individuals with syndromic intellectual and developmental disorders. Participants will be asked to complete virtual study assessments at intake and then on a monthly basis for the duration of 3-6 months. In addition, participants will attend weekly or biweekly virtual intervention visits with a study therapist.

Protocol amendment history 1 change detected by DataLookout

2026-07-14
Trial status changed: Recruiting → Active, Not Recruiting
Trial Details
NCT Number NCT06139172
Lead Sponsor Rush University Medical Center
Collaborators: Emory University
Conditions Telomeric 22Q13 Monosomy Syndrome, Tuberous Sclerosis, Hamartoma Syndrome, Multiple, Fragile X Syndrome, Angelman Syndrome, Rett Syndrome, Chromosome 15Q, Partial Deletion, Creatine Deficiency, X-linked
Enrollment 92 participants
Start Date 2023-09-15
Primary Completion 2026-12 (estimated)
Study Completion 2026-12 (estimated)
Updated on ClinicalTrials.gov 2026-07-13