Clinical Trial

International Rare Brain Tumor Registry

Study acronym: IRBTR
Recruiting
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Summary
The objective of the International Rare Brain Tumor Registry (IRBTR) is to better understand rare brain tumors through the collection of biospecimens and matched clinical data of children, adolescents, and young adult patients diagnosed with rare brain tumors.
Protocol Amendment History 1 change
notable Trial sites expanded: 10 -> 13 locations 2026-08-08
Trial Details
NCT Number NCT05697874
Lead Sponsor Children's National Research Institute
Conditions Astroblastoma, BCOR ITD Sarcoma, CNS Sarcoma, Unclassified Tumor, Malignant
Enrollment 5,800 participants
Start Date 2023-01-01
Primary Completion 2033-12 (estimated)
Study Completion 2033-12 (estimated)
Updated on ClinicalTrials.gov 2026-08-07