International Wilson's Disease Patient Registry (iWilson Registry)

Longitudinal, observational, non-interventional, standard of care Registry. Data will be collected from the routinely scheduled WD clinic visits at approximately 6-12 month intervals. At enrolment, in addition to data from the clinic visit, retrospective data will be collected from the diagnostic evaluation and any relevant past medical history and a summary of WD medication history.

NCT Number	NCT05239858
Lead Sponsor	Orphalan Collaborators: Ergomed
Conditions	Wilson's Disease
Enrollment	500 participants
Start Date	2022-06-29
Primary Completion	2027-12 (estimated)
Study Completion	2027-12 (estimated)
Updated on ClinicalTrials.gov	2026-08-11