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NCT04507997 · ClinicalTrials.gov record · last posted 2025-04-03

Angelman Syndrome Natural History Study

StatusRecruiting
PhaseNot specified
Started2018-08-01
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from the ClinicalTrials.gov record
The goal of this study is to conduct a prospective, longitudinal natural history study of children and adults with Angelman Syndrome using investigator-observed and parent-reported outcome measures to obtain data that will be useful for future clinical trials.

Amendment record 12 amendments on the ClinicalTrials.gov record

This ClinicalTrials.gov record has been amended 12 times since 2020-08-08; most recent amendment 2025-03-30. DataLookout shows field-level changes from the day a trial enters its daily monitoring; earlier amendments are counted here from the ClinicalTrials.gov version history. See every version on ClinicalTrials.gov ↗

Trial Details
NCT Number NCT04507997
Lead Sponsor Boston Children's Hospital
Collaborators: University of California, San Diego, Angelman Syndrome Biomarker & Outcome Measure Consortium (A-BOM), Food and Drug Administration (FDA), Angelman Syndrome Foundation, Inc.
Conditions Angelman Syndrome
Enrollment 300 participants
Start Date 2018-08-01
Primary Completion 2031-04 (estimated)
Study Completion 2031-04 (estimated)
Updated on ClinicalTrials.gov 2025-04-03