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COPD Patient-Powered Research Network

Study acronym: COPD PPRN
StatusRecruiting
PhaseNot specified
Started
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Record status
This record was last updated March 10, 2022 (before its estimated January 2025 completion). Its status may not reflect the trial's current state.

Record History

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  1. Re-verified, no change to tracked fieldsv6
  2. Site contact updatedv5
  3. 2 versions Re-verified since Jan 30, 2019, no change to tracked fieldsv3-v4
  4. Primary endpoints revised (4)v2
  5. Study First Submitted
  • Stopped: an ongoing trial was terminated, suspended or withdrawn.
  • Notable: the trial’s plan changed such as a big move in its timeline or size, a new primary endpoint, sponsor or phase, or recruiting opened or resumed.
  • Minor: routine progress and housekeeping, such as sites added or enrollment closed.
COPD Foundation
4 trials monitored
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COPD
1,119 trials monitored
See 34 trials at risk
The COPD Patient-Powered Research Network (COPD PPRN) is a patient research registry with the goal of enrolling 75,000 or more COPD patients and those at risk who are willing to share their heath information over several years and participate in research. The COPD PPRN has built an online platform to allow volunteers to enroll electronically, complete surveys, be contacted about studies they qualify for and become connected to COPD resources. The goal of the registry is to speed research to find better treatments for COPD and ultimately a cure.
Trial Details
NCT Number NCT02803242
Lead Sponsor COPD Foundation
Collaborators: Kaiser Foundation Hospitals, Center for Health Research
Conditions
(from sponsor)		 Chronic Obstructive Pulmonary Disorder, Chronic Obstructive Lung Disease, Emphysema, Chronic Bronchitis
Related terms Bronchiectasis, Bronchitis, Bronchitis, Chronic, Emphysema, Pulmonary Disease, Chronic Obstructive
Enrollment 75,000 participants
Start Date
Primary Completion (estimated)
Study Completion (estimated)
Updated on ClinicalTrials.gov