The National Amyotrophic Lateral Sclerosis Registry

The purpose of this registry is to (A) better describe the incidence and prevalence of Amyotrophic Lateral Sclerosis (ALS) in the United States;(B) examine appropriate factors, such as environmental and occupational, that may be associated with the disease; (C) better outline key demographic factors (such as age, race or ethnicity, gender, and family history of individuals who are diagnosed with the disease) associated with the disease; and (D) better examine the connection between ALS and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, and in some cases progress to ALS.

NCT Number	NCT01772602
Lead Sponsor	Centers for Disease Control and Prevention Collaborators: US Department of Veterans Affairs, Centers for Medicare and Medicaid Services
Conditions	Amyotrophic Lateral Sclerosis
Enrollment	30,000 participants
Start Date	2010-10
Primary Completion	2040-12 (estimated)
Study Completion	2040-12 (estimated)
Updated on ClinicalTrials.gov	2026-04-29