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Experiences and Care Pathways Shared on Social Media Regarding 5 Conditions Causing Chronic Pain

StatusCompleted
PhaseNot specified
Started
View on ClinicalTrials.gov ↗

Record History

  1. Study First Submitted
Chronic pain is a major symptom shared by several medical conditions. This study focuses on five well-defined chronic diseases : Lyme Borreliosis (LB), Post-Acute COVID-19 Syndrome (PACS or "long COVID"), fibromyalgia, endometriosis, and rheumatoid arthritis. Although all of these conditions are associated with chronic pain, they differ in several important aspects, justifying their choice for a comparison. The overall objective of this study was to describe the symptoms, treatments, and healthcare pathways associated with these five conditions, as reported by patients on social media platforms and online forums. The specific objectives were to compare PTLDS with the four other conditions across the following aspects: (i) Incompatible symptoms reported by patients; (ii) Different components of pain : physical, emotional, and social; (iii) Healthcare pathways; and (iv) Adherence to treatment recommendations.
Trial Details
NCT Number NCT07871578
Lead Sponsor Central Hospital, Nancy, France
Collaborators: University Hospital, Strasbourg, France, University Grenoble Alps
Conditions
(from sponsor)		 Lyme Borreliosis, Fibromyalgia, Rheumatoid Arthritis (RA), Post Acute COVID 19 Syndrome, Endometriosis
Related terms Arthritis, Rheumatoid, Chronic Pain, Endometriosis, Fibromyalgia, Lyme Disease, Post-Acute COVID-19 Syndrome, Post-Lyme Disease Syndrome
Enrollment 501 participants
Start Date
Primary Completion (estimated)
Study Completion (estimated)
Updated on ClinicalTrials.gov