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The Appendix Cancer PMP Research Foundation Natural History Study/Patient Registry

StatusRecruiting
PhaseNot specified
Started
View on ClinicalTrials.gov ↗

Record History

  1. Study First Submitted
ACPMP's first-ever patient-powered global patient registry/natural history study collects patient and caregiver information and data to fuel clinical trials and drive breakthroughs for appendix cancer and PMP. We've invested the time and resources to make our Registry regulatory grade. Our Registry operates under active, ongoing Institutional Review Board (IRB) oversight by independent ethicists. It is powered by NORD's IAMRARE®, an industry gold standard platform built to be consistent with FDA's best thinking on natural history studies.
Trial Details
NCT Number NCT07769346
Lead Sponsor Appendix Cancer Pseudomyxoma Peritonei Research Foundation
Collaborators: National Organization for Rare Disorders
Conditions
(from sponsor)		 Appendix Cancer, Pseudomyxoma Peritonei
Related terms Adenocarcinoma, Mucinous, Appendiceal Neoplasms, Peritoneal Neoplasms, Pseudomyxoma Peritonei
Enrollment 10,000 participants
Start Date
Primary Completion (estimated)
Study Completion (estimated)
Updated on ClinicalTrials.gov