Adapting a Psychosocial Support Intervention for the Rett Syndrome Community

This study seeks to adapt Caregiver Speaks, a psychosocial supportive intervention delivered through Facebook, for parent caregivers of children living with Rett Syndrome. This study also seeks to explore feasibility and acceptability of implementing the adapted intervention, and its impact on parent psychological outcomes.

NCT Number	NCT07730112
Lead Sponsor	Colorado State University Collaborators: University of Denver, Children's Hospital Colorado
Conditions	Rett Syndrome, Family Caregivers, Social Support, Psychological Support
Enrollment	60 participants
Start Date	2026-08-01
Primary Completion	2028-05-31 (estimated)
Study Completion	2028-05-31 (estimated)
Updated on ClinicalTrials.gov	2026-07-28