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The Development of Paediatric Bronchiectasis Quality of Life Questionnaires for Four Demographic Groups: Children 8-12years, Young People 13 - 17 Years and Parent Proxy Versions for Ages 2-5years and 6-12years

Study acronym: CASTLE
StatusEnrolling by Invitation
PhaseNot specified
Started
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Record History

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  1. Lead sponsor: Birmingham Women's and Children's NHS Foundation Trust to Birmingham Women's and Children's NHS Foundation Trust
    • Eligibility criteria expanded, about 6 words
    • Study description shortened, about 515 words
    • Publications: details revised at 1 of 1 entry
  2. Study First Submitted
  • Stopped: an ongoing trial was terminated, suspended or withdrawn.
  • Notable: the trial’s plan changed such as a big move in its timeline or size, a new primary endpoint, sponsor or phase, or recruiting opened or resumed.
  • Minor: routine progress and housekeeping, such as sites added or enrollment closed.
To develop and refine a disease-specific quality of life (QoL) questionnaire for children with bronchiectasis, informed by qualitative interviews with affected children, young people, and their parents. The paediatric bronchiectasis- specific quality of life (PQOL-B) questionnaire will be developed across four demographics: Children aged 8-12 years Young people aged 13 -17 years Parent-proxy for 2-5years Parent-proxy for 6-12years
Trial Details
NCT Number NCT07728006
Lead Sponsor Birmingham Women's and Children's NHS Foundation Trust
Conditions
(from sponsor)		 Paediatric Bronchiectasis
Enrollment 78 participants
Start Date
Primary Completion (estimated)
Study Completion (estimated)
Updated on ClinicalTrials.gov