Adult Bladder and Quality of Life Evaluation in Spina Bifida

Spina bifida (SB) is a birth defect that affects the spine, often causing paralysis in the legs and problems with bladder and bowel control. Managing these bladder issues is important, but different methods, like using a catheter or surgery, can impact a person's quality of life. This study looks at how different bladder management methods affect the quality of life for young people with SB. Researchers will ask people with SB to complete a survey about how they manage their bladder and how it impacts their daily lives. The main goal is to find out if certain bladder management methods are associated with a better quality of life. This information could help doctors make better treatment decisions and counsel young people living with SB.

NCT Number	NCT07642466
Lead Sponsor	Blayne Welk Collaborators: London Health Sciences Centre Research Institute OR Lawson Research Institute of St. Joseph's
Conditions	Spina Bifida or Spinal Dysraphism
Enrollment	300 participants
Start Date	2025-01-01
Primary Completion	2026-10-31 (estimated)
Study Completion	2026-11-01 (estimated)
Updated on ClinicalTrials.gov	2026-06-12