The overarching goal of the EPOCH project is to:
* Support a broad and robust needs assessment in the haemophilia space in China
* Measure the variability in the needs and care provision
* Generate outcome data (health economic outcomes and supporting clinical and PRO data) to enable measuring the impact of different treatment modalities and different levels of treatment access PRIMARY OBJECTIVES
* Determine the burden of haemophilia in China, and the determinants of its variability
* Determine the costs of haemophilia care in China, and the determinants of its variability SECONDARY OBJECTIVES
* Measure treatment patterns and their variability
* Measure levels of access to care
* Estimate the impact of haemophilia and its treatment of patients reported outcomes
* Understand consistency of care by centres/geography/demographics