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Self-Efficacy Enhancement Among Online Support Group of Primary Caregivers of Children With Neuro Muscular Dystrophy

Study acronym: SEE-NMD
StatusActive, Not Recruiting
PhaseNot applicable
Started
View on ClinicalTrials.gov ↗
Trial flagged as At Risk
Primary completion moved at least 7 months later Mar 23, 2026 → Nov 20, 2026
See other at-risk trials from Aga Khan University

Record History

  1. Primary completion pushed from Mar 23, 2026 to Nov 20, 2026 Start date changed from estimate of Feb 23, 2026 to Aug 15, 2026 · Trial status changed: Not Yet Recruiting → Active, Not Recruiting · Enrollment increased: 30 → 34 participants · 6 more Show 9 more changesShow less
    • Start date changed from estimate of Feb 23, 2026 to Aug 15, 2026
    • Trial status changed: Not Yet Recruiting → Active, Not Recruiting
    • Enrollment increased: 30 → 34 participants
    • Completion pushed from May 23, 2026 to Dec 4, 2026
    • Interventions modified
    • Study sites: 0 to 1
    • Study description shortened, about 419 words
    • Eligibility criteria expanded, about 5 words
    • Study title expanded, about 2 words
  2. Study Status, Outcome Measures, Contacts/Locationsv2
  3. Study First Submitted
  • Stopped: an ongoing trial was terminated, suspended or withdrawn.
  • Notable: the trial’s plan changed such as a big move in its timeline or size, a new primary endpoint, sponsor or phase, or recruiting opened or resumed.
  • Minor: routine progress and housekeeping, such as sites added or enrollment closed.
The goal of this clinical trial is to learn if providing a multicomponent intervention improves the confidence of caregivers of children with DMD or SMA. The main question it aims to answer is: Does this intervention increase their self-efficacy scores over 8 weeks time? Researchers will compare scores at baseline (pre intervention) and after 8 weeks (post intervention)
Trial Details
NCT Number NCT07356063
Lead Sponsor Aga Khan University
Conditions Duchenne Muscular Dystrophy (DMD), Spinal Muscular Atrophy (SMA)
Enrollment 34 participants
Start Date
Primary Completion (estimated)
Study Completion (estimated)
Updated on ClinicalTrials.gov