Clinical Trial

Quality of Life, Psychological Impact, and Care-related Challenges in Patients Affected by Von Hippel-Lindau Syndrome.

Study acronym: QoL- VHL
Active, Not Recruiting
View on ClinicalTrials.gov →
Summary
This is a single-centre, cross-sectional observational study aiming to assess the psychological burden, quality of life, and perceived barriers to care in patients with von Hippel-Lindau syndrome (VHL). Data will be collected through an anonymous online questionnaire, specifically designed for the study and administered via Google Forms.
Protocol Amendment History 1 change
critical Trial status changed: Not Yet Recruiting → Active, Not Recruiting 2026-05-12
Trial Details
NCT Number NCT07275099
Lead Sponsor IRCCS Ospedale San Raffaele
Conditions VHL - Von Hippel-Lindau Syndrome
Enrollment 200 participants
Start Date 2026-05-01
Primary Completion 2035-12-01 (estimated)
Study Completion 2035-12-01 (estimated)
Updated on ClinicalTrials.gov 2026-05-11