Understanding the Lived Experience and Bereavement of Caregivers of People With Alzheimer's Disease

The main objective of this study is to explore the lived experience of caregivers and family members of people with Alzheimer's disease (AD), from the beginning of caregiving through the bereavement process following the patient's death. Using a mixed-methods design, qualitative data will be collected through in-depth interviews and combined with quantitative data obtained from standardized scales. The results will aim to determine whether prolonged caregiving significantly affects the caregiver's or family member's personal, emotional, and occupational well-being, as well as whether it leads to a reorganization of activities of daily living (ADL), an increased perception of burden, and/or a decreased quality of life. The study will also examine the presence of positive adaptation experiences.

NCT Number	NCT07251738
Lead Sponsor	Universidad Rey Juan Carlos
Conditions	Alzheimer Disease (AD), Occupational Therapy, Family Caregivers
Enrollment	66 participants
Start Date	2025-12-01
Primary Completion	2026-05-31 (estimated)
Study Completion	2026-07-31 (estimated)
Updated on ClinicalTrials.gov	2025-11-26