Clinical Trial

Diagnostic Journey, Patient Experience, and Disparities in the Treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System

Study acronym: SMA
Recruiting
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Record status
This record was last updated January 16, 2026 (before its estimated June 30, 2026 completion). Its status may not reflect the trial's current state.
Summary
Evaluate the diagnostic journey, patient experience, and disparities in the treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System.
Protocol Amendment History 1 amendment
This ClinicalTrials.gov record has been amended once since 2025-10-29.
Trial Details
NCT Number NCT07223489
Lead Sponsor Medstar Health Research Institute
Conditions Spinal Muscular Atrophy (SMA)
Enrollment 200 participants
Start Date 2025-10-10
Primary Completion 2026-06-30 (estimated)
Study Completion 2026-12-30 (estimated)
Updated on ClinicalTrials.gov 2026-01-16