Clinical Trial

Information Sources in Pulmonary Hypertension

Study acronym: inPHorma
Not Yet Recruiting
View on ClinicalTrials.gov →
Summary
Pulmonary hypertension is a serious disease that affects patients' health, daily life, and emotional well-being. Many patients and their caregivers actively look for information to better understand the condition and its treatment. However, the quality of information found in different sources, such as the internet, social media, health professionals, and patient groups, can vary. This study will use a short questionnaire to learn where patients and caregivers search for information, what topics they look for, how satisfied they are with what they find, and which sources they trust most. The results will help improve communication strategies, educational materials, and support programs for people living with pulmonary hypertension and their families.
Trial Details
NCT Number NCT07207525
Lead Sponsor University of Sao Paulo General Hospital
Conditions Pulmonary Arterial Hypertension (PAH)
Enrollment 100 participants
Start Date 2025-11
Primary Completion 2026-12 (estimated)
Study Completion 2027-03 (estimated)
Updated on ClinicalTrials.gov 2025-10-06