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Characteristics and Impacts of X-linked Hypohidrotic Ectodermal Dysplasia (XLHED) in Boys: An Observational International Study

Study acronym: EdeReaLife
StatusCompleted
PhaseNot specified
Started
View on ClinicalTrials.gov ↗

Record History

  1. Trial completed Primary completion date changed from estimate of Nov 19, 2026 to Nov 26, 2025 · Eligibility criteria expanded, about 7 words · Secondary endpoints: details revised at 2 of 2 entries Show 3 more changesShow less
    • Primary completion date changed from estimate of Nov 19, 2026 to Nov 26, 2025
    • Eligibility criteria expanded, about 7 words
    • Secondary endpoints: details revised at 2 of 2 entries
  2. Study First Submitted
  • Stopped: an ongoing trial was terminated, suspended or withdrawn.
  • Notable: the trial’s plan changed such as a big move in its timeline or size, a new primary endpoint, sponsor or phase, or recruiting opened or resumed.
  • Minor: routine progress and housekeeping, such as sites added or enrollment closed.
This is an observational, multicentre, international study over a 2-year follow-up period. The aim of this study is to understand how XLHED affects the lives of young male patients and their families over time. By studying the natural course of the disease and its impact, the study could improve the understanding of the challenges faced by these patients and their families.
Trial Details
NCT Number NCT07096206
Lead Sponsor Pierre Fabre Medicament
Conditions X-Linked Hypohidrotic Ectodermal Dysplasia (XLHED)
Enrollment 27 participants
Start Date
Primary Completion (estimated)
Study Completion (estimated)
Updated on ClinicalTrials.gov