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Observational Study to Describe Health-Related Quality of Life and Measure Disease Burden Among Patients With Long QT Syndrome Types (LQTS) 2 and 3

StatusActive, Not Recruiting
PhaseNot specified
Started
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Record History

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  1. Enrollment closed, study ongoing
    • Eligibility criteria expanded, about 13 words
    • Site details revised
  2. Trial status: Not Yet Recruiting to Recruiting
    • Start date changed from estimate of Sep 15, 2025 to Oct 27, 2025
    • Site details revised
    v3
  3. Study sites: 0 to 1v2
  4. Study First Submitted
  • Stopped: an ongoing trial was terminated, suspended or withdrawn.
  • Notable: the trial’s plan changed such as a big move in its timeline or size, a new primary endpoint, sponsor or phase, or recruiting opened or resumed.
  • Minor: routine progress and housekeeping, such as sites added or enrollment closed.
This is a cross-sectional observational study designed to assess the disease burden and quality of life in individuals with LQTS 2 and 3. Each participant will answer each patient-reported outcome questionnaire only once over a 6-month period. The study will enroll up to 200 participants.
Trial Details
NCT Number NCT07075445
Lead Sponsor Thryv Therapeutics, Inc.
Conditions
(from sponsor)		 Long QT Syndrome Type 3, Long QT Syndrome 2
Related terms Long Qt Syndrome 2, Long QT syndrome type 3
Enrollment 200 participants
Start Date
Primary Completion (estimated)
Study Completion (estimated)
Updated on ClinicalTrials.gov