Parent Tube Weaning Interviews

Recent developments in remote monitoring software can provide a proactive means for data transfer for healthcare teams to communicate with families regarding activities like weaning from feeding tubes. Children's Mercy began utilizing a mHealth technology - CHAMP App® - for tube weaning in the Fall of 2023. Research gaps remain in this population, including comparing the experiences of families who could wean with methods available prior to the innovative use of a medical team collaborating with mHealth technology. This will be a single site study with one-time naturalistic, semi-structured parent interviews of children who have attempted tube weaning in their homes with two different models of care (standard ambulatory tube weaning and with the CHAMP App pilot).

NCT Number	NCT07054983
Lead Sponsor	Children's Mercy Hospital Kansas City Collaborators: The Gerber Foundation, Daisy Foundation
Conditions	Feeding Difficulties, Remote Patient Monitoring, Pediatric Feeding Disorders
Enrollment	15 participants
Start Date	2025-07-30
Primary Completion	2026-10 (estimated)
Study Completion	2026-10 (estimated)
Updated on ClinicalTrials.gov	2026-05-15