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Acceptability, Feasibility, Safety and Efficacy of a Optimized Rehabilitation Program for Treated Patients With Spinal Muscular Atrophy (SMA).

Study acronym: ACE SMA
StatusCompleted
PhaseNot applicable
Started2024-06-01
View on ClinicalTrials.gov ↗
The goal of this study is to investigate the acceptability, feasibility, safety and efficacy of an optimized rehabilitation program for treated patients with spinal muscular atrophy (SMA) compared to the current rehabilitation program in the United Kingdom. The aim is to provide patients with more hands on physiotherapy and access to rehabilitation devices at home to support parents currently providing rehabilitation on their own.

Amendment history 2 changes detected by DataLookout

2026-09-16
notable
Trial completed
2026-09-16
minor
Study completion confirmed: August 2026 (last estimated December 2026)
Trial Details
NCT Number NCT06419322
Lead Sponsor University of Oxford
Collaborators: Oxford Brookes University, Oxford University Hospitals NHS Trust, ACE SMA Charity, Roche Products Limited, Scholar Rock, Inc., Biohaven Therapeutics Ltd., Rally Round Rupert Charity
Conditions Spinal Muscular Atrophy
Enrollment 14 participants
Start Date 2024-06-01
Primary Completion 2026-06-30 (estimated)
Study Completion 2026-08-31 (estimated)
Updated on ClinicalTrials.gov 2026-09-15