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NCT06186856 · ClinicalTrials.gov record · last posted 2026-04-22

Epidemiological Data on Mast Cell Pathologies in France

Study acronym: DATAMAST
StatusRecruiting
PhaseNot specified
Started2024-11-01
View on ClinicalTrials.gov ↗
from the ClinicalTrials.gov record
Mast cell disorders constitute a heterogeneous group of diseases, including : * mastocytosis, i.e. cutaneous, indolent and severe forms of the disease, such as aggressive mastocytosis and mast cell leukemia) ; * mast cell-associated diseases such as mast cell activation syndrome (idiopathic, secondary or clonal), affecting both children and adults. No epidemiological data are currently available in France. In France, medical care of mast cell disorders is mainly provided by a rare disease network (CEREMAST), whose CRMR is located at the Necker Enfants Malades hospital in Paris. A total of 20 centers are located throughout France. Our aim is to use this network to study patients suffering from these diseases. The overall aim of the study is to improve the understanding, diagnosis, prognosis, recognition and management of patients with mastocytosis.

Amendment record 9 amendments on the ClinicalTrials.gov record

This ClinicalTrials.gov record has been amended 9 times since 2023-12-15; most recent amendment 2026-04-21. DataLookout shows field-level changes from the day a trial enters its daily monitoring; earlier amendments are counted here from the ClinicalTrials.gov version history. See every version on ClinicalTrials.gov ↗

2024-04-26
Status change Not Yet RecruitingRecruitingv1
Trial Details
NCT Number NCT06186856
Lead Sponsor Imagine Institute
Conditions Mast Cell Disorder
Enrollment 13,000 participants
Start Date 2024-11-01
Primary Completion 2038-12-31 (estimated)
Study Completion 2038-12-31 (estimated)
Updated on ClinicalTrials.gov 2026-04-22