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NCT05945576 · ClinicalTrials.gov record · last posted 2026-02-12

IDMet (RaDiCo Cohort) (RaDiCo-IDMet)

Study acronym: IDMet
StatusRecruiting
PhaseNot specified
Started2017-03-10
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from the ClinicalTrials.gov record
The goal of this observational study is to describe the natural history of imprinting disorders (IDs) according to their metabolic profile in all patients (adults and children) affected with an ID regardless of the severity of the disease, with a molecular characterization, with a signed informed consent for all subjects, followed in one partner's center. The main questions it aims to answer are: * Can we identify common metabolic profiles for all imprinted diseases? * Which imprinting disorders have an impact on the metabolic profiles of IDs? * Which are the metabolic risks associated to IDs? * Can we use the metabolic profiles for the clinical classification and prognosis of IDs? * Are there common therapeutic approaches for all IDs?

Amendment record 2 amendments on the ClinicalTrials.gov record

This ClinicalTrials.gov record has been amended 2 times since 2023-07-06; most recent amendment 2026-02-10. DataLookout shows field-level changes from the day a trial enters its daily monitoring; earlier amendments are counted here from the ClinicalTrials.gov version history. See every version on ClinicalTrials.gov ↗

Trial Details
NCT Number NCT05945576
Lead Sponsor Institut National de la Santé Et de la Recherche Médicale, France
Conditions Silver Russell Syndrome, Beckwith-Wiedemann Syndrome, Transient Neonatal Diabetes Mellitus, Angelman Syndrome, Prader-Willi Syndrome, Temple Syndrome, Kagami-Ogata Syndrome, Pseudohypoparathyroidism +1 more
Enrollment 2,000 participants
Start Date 2017-03-10
Primary Completion 2028-03 (estimated)
Study Completion 2028-03 (estimated)
Updated on ClinicalTrials.gov 2026-02-12