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Natural History Study for Charcot Marie Tooth Disease

StatusRecruiting
PhaseNot specified
Started
View on ClinicalTrials.gov ↗

Record History

  1. Site contact updated
  2. Re-verified, no change to tracked fieldsv2
  3. Study First Submitted
  • Stopped: an ongoing trial was terminated, suspended or withdrawn.
  • Notable: the trial’s plan changed such as a big move in its timeline or size, a new primary endpoint, sponsor or phase, or recruiting opened or resumed.
  • Minor: routine progress and housekeeping, such as sites added or enrollment closed.
The goal of this Natural History Study for Charcot-Marie-Tooth is to acquire, record, and analyze patient-reported data and associated genetic reports, Electronic Health Records (EHRs) and clinical notes to identify the burden, diagnostic journey, and prevalence of disease that will aid scientists in their work toward finding a cure. Participants will be asked to complete a Natural History Survey.
Trial Details
NCT Number NCT05902351
Lead Sponsor Hereditary Neuropathy Foundation
Conditions
(from sponsor)		 Charcot-Marie-Tooth Disease, Charcot-Marie-Tooth, Charcot-Marie-Tooth Disease, Type IA, Charcot-Marie-Tooth Disease Type 2A, Charcot-Marie-Tooth Disease Type 2, Charcot-Marie-Tooth Disease, Type 2C, Charcot-Marie-Tooth Disease Type 2A2B, Charcot-Marie-Tooth Disease Type 2B2 +41 more
Related terms [OBSOLETE] Charcot-Marie-Tooth disease, Type 2C, Charcot-Marie-Tooth Disease, Charcot-Marie-Tooth disease and deafness, Charcot-Marie-Tooth Disease, Axonal, Type 2a1, Charcot-Marie-Tooth Disease, Axonal, Type 2A2, Charcot-Marie-Tooth Disease, Axonal, Type 2n, Charcot-Marie-Tooth disease, Type 1C, Charcot-Marie-Tooth disease, Type 1D, Charcot-Marie-Tooth disease, Type 1F, Charcot-Marie-Tooth disease, Type 2A, Charcot-Marie-Tooth disease, Type 2B2, Charcot-Marie-Tooth disease, Type 2D, Charcot-Marie-Tooth disease, Type 2E, Charcot-Marie-Tooth disease, Type 2H, Charcot-Marie-Tooth disease, Type 2I, Charcot-Marie-Tooth disease, Type 2J, Charcot-Marie-Tooth disease, Type 2K, Charcot-Marie-Tooth disease, Type 4A, Charcot-Marie-Tooth disease, Type 4A, axonal form, Charcot-Marie-Tooth disease, Type 4B1, Charcot-Marie-Tooth disease, Type 4B2, Charcot-Marie-Tooth disease, Type 4C, Charcot-Marie-Tooth disease, Type 4E, Charcot-Marie-Tooth Disease, Type 4H, Disease, Limb-girdle muscular dystrophy, type 1B, Neuropathy, hereditary motor and sensory, LOM type, Peripheral Nervous System Diseases
Enrollment 10,000 participants
Start Date
Primary Completion (estimated)
Study Completion (estimated)
Updated on ClinicalTrials.gov