The KidneyCARE (Community Access to Research Equity) Study

For chronic kidney disease (CKD), there is a lack of unique and powerful platform for patient engagement, research studies and public health advocacy work. The National kidney Foundation (NKF) launched the first nationwide registry for people at all stages and types of CKD, including people on dialysis and kidney transplant recipients, called the KidneyCARE Study (kidneycarestudy.org). The KidneyCARE Study is a non-interventional research study which means participants will not have to take medications or do any additional tests to participate. They are simply asked to share some personal and health information, and their experiences with their disease through a secure portal. The Study also collaborates with health systems to obtain additional electronic health records (EHR) data. This unique combination of data collected will address the gap of individualized educational resources and will enhance clinical research, clinical care, and health policy decisions to be centered on the patient. The Study is all online and can be accessed any time of day at kidneycarestudy.org. Participation is voluntary and free.

NCT Number	NCT05497518
Lead Sponsor	Tufts Medical Center Collaborators: National Kidney Foundation, United States
Conditions	Chronic Kidney Disease, Dialysis, Kidney Transplant
Enrollment	50,000 participants
Start Date	2021-02-25
Primary Completion	2070-02-24 (estimated)
Study Completion	2070-02-24 (estimated)
Updated on ClinicalTrials.gov	2025-05-13