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The Severe Von Willebrand Disease (sVWD) Patient Registry

StatusRecruiting
PhaseNot specified
Started
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Record History

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  1. Primary and study completion dates: Jan 2027 to Dec 2031
    • Eligibility criteria expanded, about 59 words
    • Study description shortened, about 3 words
    v4
  2. Site contact updatedv3
  3. Re-verified, no change to tracked fieldsv2
  4. Study First Submitted
  • Stopped: an ongoing trial was terminated, suspended or withdrawn.
  • Notable: the trial’s plan changed such as a big move in its timeline or size, a new primary endpoint, sponsor or phase, or recruiting opened or resumed.
  • Minor: routine progress and housekeeping, such as sites added or enrollment closed.
A web-based registry will be created by the sponsor, VWD Connect Foundation (VCF), to collect data on patients with severe Von Willebrand Disease (sVWD). Data will be self-reported by patients and/or collected by registry personnel, as appropriate. The purpose of the sVWD Patient Registry is to create a database of well-characterized (with respect to demographics, medical history, symptoms, laboratory and genetic data, etc.) patients with sVWD for participation in retrospective and prospective research.
Trial Details
NCT Number NCT05437536
Lead Sponsor VWD Connect Foundation
Conditions
(from sponsor)		 VWD - Von Willebrand's Disease
Related terms von Willebrand Disease, Type 3, von Willebrand Diseases
Enrollment 400 participants
Start Date
Primary Completion (estimated)
Study Completion (estimated)
Updated on ClinicalTrials.gov