PVRI GoDeep Global Deep Phenotyping Meta-Registry for Pulmonary Hypertension

PVRI-GoDeep is a PH Meta-Registry, run under the umbrella of the Pulmonary Vascular Research Institute (PVRI). It merges anonymized PH patient related data from various local registries around the world run under the responsibility of PVRI members. It will be operated under the auspices of the University of Giessen/Giessen PH center. Combining deep phenotyping with worldwide outreach, PVRI-GoDeep aims to offer insights into specific geographical and ethnical profiles of PH, to deepen the epidemiological, clinical and molecular understanding of this disease and to promote strategies for improved individualized treatment of PH patients.

NCT Number	NCT05329714
Lead Sponsor	University of Giessen Collaborators: Imperial College London, Johns Hopkins University, Stanford University, University of Sheffield, University of Pittsburgh, University of Pavia, Hospital de Niños de la Santísima Trinidad, Academy of Medical Sciences of Ukraine, The Methodist Hospital Research Institute, Vanderbilt University Medical Center, Mayo Clinic, National and Kapodistrian University of Athens, Aristotle University Of Thessaloniki, University Hospital of Targu Mures, Romania, University Hospital Heidelberg, Milpark Hospital, University of Minnesota, Royal Prince Alfred Hospital, Sydney, Australia, Fiona Stanley Hospital, Sunshine Coast University Hospital, China-Japan Friendship Hospital, Medical University of Graz, National Hospital Organization Okayama Medical Center, Royal Hobart Hospital, University Hospital, Zürich, Universidad Nacional de La Plata, Gold Coast Hospital and Health Service
Conditions	Pulmonary Hypertension, Global Health
Enrollment	40,000 participants
Start Date	2020-01-30
Primary Completion	2050-01-30 (estimated)
Study Completion	2055-01-30 (estimated)
Updated on ClinicalTrials.gov	2025-04-04