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NCT05293184 · ClinicalTrials.gov record · last posted 2024-02-23

The Global Angelman Syndrome Registry

Study acronym: GASR
StatusRecruiting
PhaseNot specified
Started2016-09-28
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from the ClinicalTrials.gov record
The Global Angelman Syndrome Registry is an online patient organisation driven registry to collect information about the natural history of children and adults with Angelman Syndrome. The registry will facilitate 1) recruitment for clinical trials into therapies and interventions to benefit participants with Angelman Syndrome and their families, and 2) advancement of research and best standards of care for Angelman Syndrome. The registry is currently available in English, Spanish, Traditional Chinese, Italian, Polish, Hindi, and Brazilian Portuguese.

Amendment record 2 amendments on the ClinicalTrials.gov record

This ClinicalTrials.gov record has been amended 2 times since 2022-03-14; most recent amendment 2024-02-21. DataLookout shows field-level changes from the day a trial enters its daily monitoring; earlier amendments are counted here from the ClinicalTrials.gov version history. See every version on ClinicalTrials.gov ↗

Trial Details
NCT Number NCT05293184
Lead Sponsor Foundation for Angelman Syndrome Therapeutics, Australia
Collaborators: Queensland University of Technology
Conditions Angelman Syndrome
Enrollment 5,000 participants
Start Date 2016-09-28
Primary Completion 2099-12-31 (estimated)
Study Completion 2099-12-31 (estimated)
Updated on ClinicalTrials.gov 2024-02-23