Swiss Registry for Neuromuscular Disorders

The Swiss Patient Registry for DMD/BMD and SMA was launched in 2008 in order to give Swiss patients access to new therapies. It was founded with the financial support of several patient organizations and research foundations. Since 2008, children, adolescents and adults with DMD, BMD and SMA are registered with the help of all major muscle centers in Switzerland. After nearly ten years of activity, the Swiss Patient Registry for DMD/BMD and SMA implemented several adaptations in 2018 to meet current and future expectations of patient's organizations, health authorities and research organizations.

NCT Number	NCT05102916
Lead Sponsor	University of Bern Collaborators: University Children's Hospital Basel, Insel Gruppe AG, University Hospital Bern, University of Lausanne Hospitals, Ente Ospedaliero Cantonale, Bellinzona, University Children's Hospital, Zurich, University Hospital, Zürich, SwissPedNet
Conditions	SMA, DMD, BMD, IMD, Congenital Muscular Dystrophy
Enrollment	2,000 participants
Start Date	2018-06-20
Primary Completion	2071-01-01 (estimated)
Study Completion	2071-01-01 (estimated)
Updated on ClinicalTrials.gov	2026-01-15