Clinical Trial

CureDuchenne Link®: A Resource for Research

Study acronym: CDLink
Completed
View on ClinicalTrials.gov →
Summary
CureDuchenne link is a data hub comprised of integrated biospecimens, clinical data, and self- and/or caregiver-reported information from participants. Anyone over 4 weeks old who has been diagnosed with DMD or BMD or who is a carrier of DMD or BMD can join. Parents or legal guardians can sign up their child(ren).
Protocol Amendment History 4 changes
critical Trial completed 2026-07-25
notable Enrollment reduced: 5000 -> 240 participants 2026-07-25
notable Primary completion moved earlier: 2031-07-09 -> 2025-12-12 2026-07-25
minor Completion moved earlier: 2031-07-09 -> 2025-12-12 2026-07-25
Trial Details
NCT Number NCT04972604
Lead Sponsor CureDuchenne
Conditions Duchenne Muscular Dystrophy, Becker Muscular Dystrophy
Enrollment 240 participants
Start Date 2021-07-09
Primary Completion 2025-12-12 (estimated)
Study Completion 2025-12-12 (estimated)
Updated on ClinicalTrials.gov 2026-07-24