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Burden of Disease and Functional Impairment in XLH

Study acronym: IdeFIX
StatusActive, Not Recruiting
PhaseNot specified
Started
View on ClinicalTrials.gov ↗

Record History

  1. Primary completion date changed from estimate of Mar 2024 to Nov 30, 2024
    • Study completion date: Oct 2024 to Oct 2026
    v5
  2. Trial status: Recruiting to Active, Not Recruiting
    • Site details revised
    v4
  3. 2 versions Re-verified since Apr 26, 2022, no change to tracked fieldsv2-v3
  4. Study First Submitted
  • Stopped: an ongoing trial was terminated, suspended or withdrawn.
  • Notable: the trial’s plan changed such as a big move in its timeline or size, a new primary endpoint, sponsor or phase, or recruiting opened or resumed.
  • Minor: routine progress and housekeeping, such as sites added or enrollment closed.
Observational study comprising prospective follow up as well as retrospective chart review in order to evaluate the longitudinal course of the disease in XLH patients with a specific focus on functional impairment, physical performance and complications associated with the disease or respective treatment.
Trial Details
NCT Number NCT04946409
Lead Sponsor Wuerzburg University Hospital
Collaborators: Kyowa Kirin, Inc.
Conditions
(from sponsor)		 X Linked Hypophosphatemia
Related terms Familial Hypophosphatemic Rickets
Enrollment 60 participants
Start Date
Primary Completion (estimated)
Study Completion (estimated)
Updated on ClinicalTrials.gov