Clinical Trial

The Ear-Nose-Throat (ENT) Prospective International Cohort of PCD Patients (EPIC-PCD)

Study acronym: EPIC-PCD
Recruiting
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Summary
The Ear-Nose-Throat (ENT) Prospective International Cohort of patients with Primary Ciliary Dyskinesia (EPIC-PCD) is a prospective observational clinical cohort study, set up as a multinational multi-centre study. It is embedded into routine patient care of participating reference centres for PCD and patients keep being managed according to local procedures and guidelines.
Protocol Amendment History 4 amendments
This ClinicalTrials.gov record has been amended 4 times since 2020-10-26; most recent amendment 2025-11-24.
Trial Details
NCT Number NCT04611516
Lead Sponsor University of Bern
Collaborators: Bicetre Hospital, Centre Hospitalier Intercommunal Creteil, University Hospital Southampton NHS Foundation Trust, Universitaire Ziekenhuizen KU Leuven, Amsterdam UMC, location VUmc, University of Cyprus, Hacettepe University, Marmara University, Hospital Universitario La Fe, Insel Gruppe AG, University Hospital Bern
Conditions Primary Ciliary Dyskinesia, Kartagener Syndrome
Enrollment 1,000 participants
Start Date 2020-03-02
Primary Completion 2030-12 (estimated)
Study Completion 2040-12 (estimated)
Updated on ClinicalTrials.gov 2025-12-02