Clinical Trial

Rate of Progression in EYS Related Retinal Degeneration

Study acronym: Pro-EYS
Completed
View on ClinicalTrials.gov →
Summary
The overall goal of this project funded by the Foundation Fighting Blindness is to characterize the natural history of disease progression in patients with EYS mutations in order to accelerate the development of outcome measures for clinical trials.
Protocol Amendment History 3 changes
critical Trial completed 2026-08-06
notable Primary completion moved earlier: 2026-04-01 -> 2026-02-09 2026-08-06
minor Completion moved earlier: 2026-04-01 -> 2026-02-09 2026-08-06
Trial Details
NCT Number NCT04127006
Lead Sponsor Jaeb Center for Health Research
Collaborators: Foundation Fighting Blindness
Conditions Retinitis Pigmentosa, Eye Diseases
Enrollment 103 participants
Start Date 2020-02-25
Primary Completion 2026-02-09 (estimated)
Study Completion 2026-02-09 (estimated)
Updated on ClinicalTrials.gov 2026-08-05