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RCDP Natural History Study

StatusRecruiting
PhaseNot specified
Started
View on ClinicalTrials.gov ↗
A prospective, longitudinal observational trial in patients with RCDP. Study participants will be evaluated at baseline and approximately every 6 months by the study team. Quality of life, physiologic and functional measurements will be performed. In addition, audiologic recordings and other surveys will be completed at home by parents beginning at baseline and every 3-6 months thereafter.
Trial Details
NCT Number NCT04031287
Lead Sponsor MED-LIFE DISCOVERIES LP
Conditions
(from sponsor)		 Rhizomelic Chondrodysplasia Punctata
Related terms Chondrodysplasia Punctata, Rhizomelic
Enrollment 75 participants
Start Date
Primary Completion (estimated)
Study Completion (estimated)
Updated on ClinicalTrials.gov