Clinical Trial

Natural History Study of Leukoencephalopathy With Brainstem and Spinal Cord Involvement and Lactate Elevation (LBSL)

Recruiting
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Summary
In this study, we will conduct retrospective chart and imaging reviews and prospective longitudinal virtual assessments of individuals with LBSL.
Protocol Amendment History 6 amendments
This ClinicalTrials.gov record has been amended 6 times since 2018-08-07; most recent amendment 2024-07-01.
Trial Details
NCT Number NCT03624374
Lead Sponsor Hugo W. Moser Research Institute at Kennedy Krieger, Inc.
Conditions Leukoencephalopathies, LBSL, Leukoencephalopathy With Brainstem and Spinal Cord Involvement and Lactate Elevation, White Matter Disease, Ataxia, Cerebellar, Genetic Disease
Enrollment 100 participants
Start Date 2018-04-01
Primary Completion 2029-05 (estimated)
Study Completion 2029-05 (estimated)
Updated on ClinicalTrials.gov 2024-07-03