Swiss Primary Ciliary Dyskinesia Registry

The Swiss Primary Ciliary Dyskinesia (PCD) Registry is a national patient registry that collects information on diagnosis, symptoms, treatment and follow-up of patients with PCD in Switzerland and provides data for national and international monitoring and research.

NCT Number	NCT03606200
Lead Sponsor	University of Bern
Conditions	Primary Ciliary Dyskinesia, Kartagener Syndrome
Enrollment	800 participants
Start Date	2013-01
Primary Completion	2080-12 (estimated)
Study Completion	2080-12 (estimated)
Updated on ClinicalTrials.gov	2025-11-25