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A National Registry on Chinese Patients With Lymphangioleiomyomatosis

StatusUnknown
PhaseNot specified
Started
View on ClinicalTrials.gov ↗
Record status
This record was last updated September 24, 2021 (before its estimated October 1, 2026 completion). Its status may not reflect the trial's current state.

Record History

  1. Changed Registry marked status Unknown (sponsor has not verified the record since Sep 2021); last known: Recruiting
  2. Enrollment target: 800 to 1500 Primary and study completion dates: Dec 31, 2020 to Oct 1, 2026 · Eligibility criteria shortened, about 43 words · Secondary endpoints: details revised at 4 of 4 entries · 1 morev2 Show 4 more changesShow less
    • Primary and study completion dates: Dec 31, 2020 to Oct 1, 2026
    • Eligibility criteria shortened, about 43 words
    • Secondary endpoints: details revised at 4 of 4 entries
    • Collaborators: 13 to 11

    See this version in full on ClinicalTrials.gov ↗

  3. Study First Submitted
  • Stopped: an ongoing trial was terminated, suspended or withdrawn.
  • Notable: the trial’s plan changed such as a big move in its timeline or size, a new primary endpoint, sponsor or phase, or recruiting opened or resumed.
  • Minor: routine progress and housekeeping, such as sites added or enrollment closed.
Pulmonary lymphangioleiomyomatosis (LAM), a disease characterized by diffuse cystic changes in the lung, is a rare disorder that affects almost exclusively women. The main objectives of this study are to accurately evaluate the prevalence of LAM, the status of disease, the diagnosis and treatment, the quality of care, and the health related outcomes in China.
Trial Details
NCT Number NCT03193892
Lead Sponsor Peking Union Medical College Hospital
Collaborators: Shanghai Zhongshan Hospital, Guangzhou Institute of Respiratory Disease, Central South University, Anhui Provincial Hospital, Xiangya Hospital of Central South University, The Affiliated Nanjing Drum Tower Hospital of Nanjing University Medical School, Wuxi People's Hospital, Beijing Shijitan Hospital, Capital Medical University, West China Hospital, Fujian Provincial Hospital, Wuhan TongJi Hospital
Conditions Pulmonary Function
Enrollment 1,500 participants
Start Date
Primary Completion (estimated)
Study Completion (estimated)
Updated on ClinicalTrials.gov