German MPN-Registry for BCR-ABL 1-Negative Myeloid Neoplasms (Study Group Ulm)

To register a large number of patients with the diagnosis of a BCR-ABL 1- negative myeloid neoplasm (according to WHO 2008 / 2016 classification) in participating centers To store samples from all patients (e.g. bone marrow aspirate, peripheral blood, plasma, and buccal swap, skin biopsy samples in exceptional cases) To perform morphologic and genetic analyses To assess clinical characteristics and outcome data using a defined catalogue containing clinically relevant variables To assess biological disease features and correlate with clinical outcome data (prognostic and predictive markers) To assess quality of life

NCT Number	NCT03125707
Lead Sponsor	University of Ulm
Conditions	BCR-ABL1-Negative Myeloid Neoplasms
Enrollment	2,172 participants
Start Date	2013-05
Primary Completion	2045-09 (estimated)
Study Completion	2045-09 (estimated)
Updated on ClinicalTrials.gov	2023-05-19