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German Pediatric Hemophilia Research Database

Study acronym: GEPHARD
StatusRecruiting
PhaseNot specified
Started
View on ClinicalTrials.gov ↗

Record History

  1. Notable Enrollment target: 200 to 800v7
  2. Notable Primary completion date: Jan 1, 2022 to Dec 31, 2027 Completion date: Jan 1, 2022 to Dec 31, 2028v6 Show 1 more changeShow less
    • Completion date: Jan 1, 2022 to Dec 31, 2028
  3. Notable Lead sponsor: Ludwig-Maximilians - University of Munich to Goethe University Study site revised · Collaborators: 2 to 1v5 Show 2 more changesShow less
    • Study site revised
    • Collaborators: 2 to 1

    See this version in full on ClinicalTrials.gov ↗

  4. Minor Collaborators: 1 to 2v4 See this version in full on ClinicalTrials.gov ↗
  5. Notable Trial status: Not Yet Recruiting to Recruiting Study sites: 0 to 1 · Primary completion date: Jan 2022 to Jan 1, 2022 · Completion date: Jan 1, 2022 · 1 morev3 Show 4 more changesShow less
    • Study sites: 0 to 1
    • Primary completion date: Jan 2022 to Jan 1, 2022
    • Completion date: Jan 1, 2022
    • Start date: Jan 2017 to Jan 1, 2017
  6. Minor Re-verified, no change to tracked fieldsv2
  7. Minor Study First Submitted
  • Stopped: an ongoing trial was terminated, suspended or withdrawn.
  • Notable: the trial’s plan changed such as a big move in its timeline or size, a new primary endpoint, sponsor or phase, or recruiting opened or resumed.
  • Minor: routine progress and housekeeping, such as sites added or enrollment closed.
236 trials monitored
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The German Pediatric Hemophilia Research Database will collect data on the prophylactic and therapeutic use of factor concentrates, complications, outcome measures (joint scores, QoL) and living circumstances in newly diagnosed children with hemophilia.
Trial Details
NCT Number NCT02912143
Lead Sponsor Goethe University
Collaborators: Society for Thrombosis and Haemostasis Research (Germany)
Conditions Hemophilia A, Hemophilia B, Children, Drug Specific Antibodies
Enrollment 800 participants
Start Date
Primary Completion (estimated)
Study Completion (estimated)
Updated on ClinicalTrials.gov